I am about 12 years into motherhood now.. and like lots of Mom’s I know, I still don’t feel like I’m getting it right. Mothering kids with medical issues takes a purposeful amount of focus and attention, the kind that sometimes prevents you from being that cool ” chill” kind of mom..yet still I try , and every day I learn. I have learned that sometimes rolling off the bed as a result of a tickle fight is the kind of good clean fun that all kids need, low muscle tone or not. I have learned that a smiling , happy faced kid, that got that ” 5 more…
Tourette's Syndrome
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Most Topular Stories
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The ” Good Enough” Mom
5 Minutes for Special Needs13 May 2012 | 6:49 pm -
New York Times Best Boob Is Too A Thing
Califmom26 Apr 2012 | 11:12 pmI know some Jennys. One lives near me, and we amuse each other greatly. Occasionally we amuse other people. Last week we made the trek to Corte Madera to see our other friend, also a Jenny, at her book signing because, HOLY FUCK WE HAVE A FRIEND WHO WROTE A REAL LIVE READABLE BOOK. Also, we love her. And it's rare to see this particular Jenny outside of a bathroom. Seriously. It is. That's where I first met her. In a bathroom. It's less abnormal the longer you know her. I've now spent more time with her in a bathroom than out, I think, and this seems completely normal to me. Anyway, when… -
Fine motor skills and interhemispheric transfer in treatment‐naive male children with Tourette syndrome
MedWorm: Tourette Syndrome7 May 2012 | 10:00 pmThis study addressed whether Tourette syndrome is associated with an impairment of fine motor skills or altered interhemispheric transfer. We additionally investigated the association between interhemispheric transfer and size of the corpus callosum.Method The sample, a subsample of our larger neuroimaging sample, included 27 treatment‐naive males with ‘pure’ Tourette syndrome (age range 10y 2mo–14y 4mo; mean age 11y 10mo, SD 1y 2mo) and 26 matched healthy comparison children (age range 10y 2mo–14y 4mo; mean age 11y 10mo, SD 1y 1mo). A finger tapping task and the Purdue Pegboard… -
How can I comfort my husband?
Tourette Syndrome Message Boards3 May 2012 | 2:57 amHi I have come to this forum for advice and guidence, because I simply don't know where to turn..My name is Magen, I have been married for almost a year now to a wonderful man whom I love with all of my heart and soul...I found out shortly after we began dating that he had Tourette Syndrome, before that I simply thought he cleared his throat alot. I would notice a tic here and there but never seemed to put two and two together. To my knowledge tourette's was screaming and randonly cursing..My only source being what I had seen on T.V. He never really had… -
Magical Milk Pic-o-the-Week
welcome to my brain . net15 May 2012 | 4:13 amSource: flickr.com via Rita on PinterestYou can submit your own Magical Milk Pic to magicalmilkpics@hotmail.com
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5 Minutes for Special Needs
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The ” Good Enough” Mom
13 May 2012 | 6:49 pmI am about 12 years into motherhood now.. and like lots of Mom’s I know, I still don’t feel like I’m getting it right. Mothering kids with medical issues takes a purposeful amount of focus and attention, the kind that sometimes prevents you from being that cool ” chill” kind of mom..yet still I try , and every day I learn. I have learned that sometimes rolling off the bed as a result of a tickle fight is the kind of good clean fun that all kids need, low muscle tone or not. I have learned that a smiling , happy faced kid, that got that ” 5 more… -
Magic Marker Monday — Mother’s Day Wishes…
13 May 2012 | 6:00 pm“It took me four years to paint like Raphael, but a lifetime to paint like a child.” ~Pablo Picasso Welcome to Magic Marker Monday! If you haven’t heard about Magic Marker Monday yet, click here and then hurry right back… Hope your Mother’s Day was filled with love and all things wonderful… Happy Mother’s Day everyone! What has your little artist been up to? Link up and share! Want the Magic Marker Monday button code? Click Here! -
What a Special Needs Mom wants for Mother’s Day
11 May 2012 | 12:00 pmThis week, I’ve read lots of blog posts and memes about Mother’s Day. Some of them are pretty dead on accurate, and others hurt my heart. Lots of them are about what mother’s really want for Mother’s Day—things like for children to close the doors, pick up socks, and so on. So as I was sitting here pondering how superficial many of these things were, I started to think about what I would want for Mother’s Day. (Now, everyone will know my secrets) Health care perks! While I’m lucky enough to have a fairly good rapport with our doctors and specialists, I’d really like to have a… -
Mommy Boost
9 May 2012 | 4:00 pmMy early Mother's Day present from the child I feel like I haven’t been doing that great a job for the child lately. She has regressed a bit in her behavior at home, and my reaction has not been what I want it to be. Instead of figuring out a way to support her better I’ve been regressing myself…back to my old ways of getting frustrated and losing my temper. I need to get a grip, and soon. The other day we were hanging out in our home office while the twins took an oh so increasingly rare nap. I was pounding away on work. She was taking her after school,… -
Special Exposure Wednesday – Popcorn
9 May 2012 | 10:43 amPopcorn and his favorite movie, what could be better? Share what you managed to capture this week. Please spread the comment love around. Thank you. Sorry, can’t get the linky to work. Please leave your links in the comments, thanks!
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Califmom
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New York Times Best Boob Is Too A Thing
26 Apr 2012 | 11:12 pmI know some Jennys. One lives near me, and we amuse each other greatly. Occasionally we amuse other people. Last week we made the trek to Corte Madera to see our other friend, also a Jenny, at her book signing because, HOLY FUCK WE HAVE A FRIEND WHO WROTE A REAL LIVE READABLE BOOK. Also, we love her. And it's rare to see this particular Jenny outside of a bathroom. Seriously. It is. That's where I first met her. In a bathroom. It's less abnormal the longer you know her. I've now spent more time with her in a bathroom than out, I think, and this seems completely normal to me. Anyway, when… -
Missing You: Another Year
18 Apr 2012 | 1:19 pmToday is the second anniversary of your death. I don't like celebrating this day, so I'm not going to celebrate it so much as acknowledge it in a simple way. I want to acknowledge it here with some pictures of you. We miss you every single day. Our love for you is everlasting. -
My Son Is Quite Able: Riding BART
17 Apr 2012 | 1:56 amWhen my son was in fifth grade he was asked to leave his private school because of his disabilities. In the middle of a school day. With no warning. With no plan. Some of you will find this deplorable. Some of you will think they had a right to ask him to leave because they were a private school. After an investigation by the Department of Justice into whether or not the school violated my son's civil rights under Title III of the American's with Disabilities Act, the case was closed without a finding. What I do know is that today, on his first day at a school he selected, my fifteen-year-old… -
Rethink The Way You Think About Autism
14 Apr 2012 | 12:53 amPlease take 2 minutes to see if what YOU think about autism is what people with autism want you to think about THEM. A video by Rethinking Autism. Let me know what you think after you watch it. -
Bunnies And Birthdays And Such
13 Apr 2012 | 11:02 pmWe had a rather action-packed Spring Break. I forgot to tell y'all what we did, so I've decided to show you, instead. Eggs were hidden by sly Easter bunnies. A birthday girl celebrated her birthday with a specially requested butterfly cake. And as we returned to our work week, we enjoyed a quiet moment together, then a lunch of crispy chicken tacos at Cactus (still not a taco truck at the dump, but hey, it's hard to compete with that kind of ambience).
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MedWorm: Tourette Syndrome
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Fine motor skills and interhemispheric transfer in treatment‐naive male children with Tourette syndrome
7 May 2012 | 10:00 pmThis study addressed whether Tourette syndrome is associated with an impairment of fine motor skills or altered interhemispheric transfer. We additionally investigated the association between interhemispheric transfer and size of the corpus callosum.Method The sample, a subsample of our larger neuroimaging sample, included 27 treatment‐naive males with ‘pure’ Tourette syndrome (age range 10y 2mo–14y 4mo; mean age 11y 10mo, SD 1y 2mo) and 26 matched healthy comparison children (age range 10y 2mo–14y 4mo; mean age 11y 10mo, SD 1y 1mo). A finger tapping task and the Purdue Pegboard… -
Towards a better definition of the motor phenotype of Tourette syndrome
7 May 2012 | 10:00 pm(Source: Developmental Medicine and Child Neurology) -
Tourette syndrome in youth with and without obsessive compulsive disorder and attention deficit hyperactivity disorder
28 Apr 2012 | 12:00 amAbstract Chronic tic disorders (TD) are consistently found to have high rates of comorbidity with obsessive–compulsive disorder (OCD) and attention deficit hyperactivity disorder (ADHD). The purpose of this study is to compare the severity of TD only to TD with comorbid OCD or ADHD based on severity of tics, measures of psychopathology and additional comorbid diagnoses. Baseline data from 158 youth with a chronic TD who participated in two longitudinal studies were examined. Fifty-three percent (N = 85) of the youth also met criteria for a diagnosis of OCD, 38.6 %… -
Headaches may be more prevalent in children with Tourette syndrome
25 Apr 2012 | 10:00 pmNEW YORK (Reuters Health) - Children with Tourette syndrome may have nearly twice as many headaches, and four times as many migraines, as their peers, a new study suggests. (Source: Modern Medicine) -
Table of Contents
23 Apr 2012 | 8:41 pmAbstractNew TORDIA Data Suggests Anhedonia an Important Target for Early TreatmentAripiprazole Promising for Tourette's with Co‐Occurring ADHDShould Valproate be Prescribed for Adolescent Females with Mood Disorders?Commentary from Co‐Author Dana L. McMakin, Ph.D.TEOSS: Modest Improvement in Neurocognitive Function FoundAntidepressant Use and Impact on Rehospitalization in BD PatientsEarly Detection of Psychosis May Improve Long‐Term OutcomesTreatment Algorithms Used to Prevent Olanzapine‐Induced Weight GainStudy: Increased Hippocampal Volumes in Lithium‐Treated Teens with…
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Tourette Syndrome Message Boards
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How can I comfort my husband?
3 May 2012 | 2:57 amHi I have come to this forum for advice and guidence, because I simply don't know where to turn..My name is Magen, I have been married for almost a year now to a wonderful man whom I love with all of my heart and soul...I found out shortly after we began dating that he had Tourette Syndrome, before that I simply thought he cleared his throat alot. I would notice a tic here and there but never seemed to put two and two together. To my knowledge tourette's was screaming and randonly cursing..My only source being what I had seen on T.V. He never really had… -
Tourette Syndrome Summer Camp 2012
1 May 2012 | 4:11 pmBeen saway for a while but we still have space for our 2012 program Satursay June 24 till Sunday June 30, 2012 at YMCA Camp Duncan 35 miles North of Chicago. You can see more details at www.tourettecamp.com -
it's so bad not knowing if there's a logical explanation for what i do
14 Apr 2012 | 2:08 amhi, i'm 17 and have some bad motor tics. i'm just trying to figure out what's wrong with me, because i don't even know if i have tourettes.my dad and i both have a little OCD and i was diagnosed for ADHD and put on meds for it up until middle school when my twin sister and i were taken off because we only weighed 60 lbs. it was actually around this time that i first remember having my tics, i might have had them before, but i only first remember having them in the 7th grade.when i'm sitting in class for a long time, my leg will start doing this bouncy thing- which is no big deal, i always… -
Hello we have a 3 yr old son and 9 yr old daughter w/TS
11 Apr 2012 | 11:36 amHello, We are new here and we have 3 children and 2 of them have TS. Our 9 year old daughter began having tics at age 4, and our son is 3 and started having tics about 5 months ago. Our daughter's tics started off with eye blinking, then head twitching, and of course the change from time to time. She has whistled and hummed, opens her mouth wide, raises her eyebrows, and repeats her own words and yours at times. Our 3 year old we noticed excessively blinking about 5 months ago and we figured he would have TS too, as we were… -
Mom to 3 y.o.
8 Apr 2012 | 9:57 pmI'm new here and exploring and would love some messages of support. My ds has been followed by a neurologist since 25 months w/o a TS diagnosis. But, the last few months have brought us classic TS verbal and motor tics. We have a neuro follow-up on Tuesday, and I think we'll finally get an official diagnosis. I'm surprised by how stressed and depressed I feel leading up to the appt. I'm desperate for stories of success. His tics have become so obvious. I feel TERRIBLE for feeling embarrassed by strangers' stares on the subway. I worry A will never have friends. I feel guilty that I can't tell…
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welcome to my brain . net
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Magical Milk Pic-o-the-Week
15 May 2012 | 4:13 amSource: flickr.com via Rita on PinterestYou can submit your own Magical Milk Pic to magicalmilkpics@hotmail.com -
What's in a name?
11 May 2012 | 4:04 pm(photo by elvis santana, used with permission) Today I read something that broke my heart. Someone was recapping a conversation they had with a former customer. That customer is an immigrant and ... well, let's just say their name is not something like "Mary" or "Kelsie." This person's boss, however, says he is having difficulty remembering her name and makes her wear a name tag that reads "Sally." Really. I got to this point in writing today's post and have stared at it for hours. Each time I come back to it, my heart pounds. It hits me very close to home, and I… -
Oh right. Mother's Day.
10 May 2012 | 9:14 amWe can do this.You're not alone.It's not fair to any of us. It's hard for everyone in this walk. Let's try to remember that. Allow space for that. -
Permission to like yourself
9 May 2012 | 4:28 amThis is true when I read it. Is it true for you? In a rare event, I am not allowing comments. I am not adding a picture. I want you to picture you. Then find out what is holding up any part of these words in your life. No need to discuss it with any of us. Discuss it with you. I love myself. In fact, I really like me. I'm not a narcissist. I don't need you to like me or stand in awe of me. I don't think I'm better than anyone else. In fact, I find me to be gloriously average. Living in moderation between some really fun and… -
Magical Milk Pic-o-the-Week
8 May 2012 | 5:42 am"After three miscarriages, my husband Ray and I were honored to welcome Abigail Hope Miller into our family January 16th, 2012. Love reading your blog and appreciate you sharing life with us readers." (photo by Sarah Chisolm-Miller, used with permission) You can submit your own Magical Milk Pic to magicalmilkpics@hotmail.com
